Saturday, April 30, 2011

EASTER DRESS

We attempted Easter portraits of the kids this afternoon, since we didn't get the chance last weekend. We tried. Really we did. Cora cooperated, and Jay got some cute shots of her. James, on the other hand, was dressed just as cute, but really wanted nothing to do with the photo shoot. And we were inclined to let him be, considering how sensitive he is these days as he's recovering from the Kawasaki (the least little thing sets him off, and it's not pretty). Maybe Jay will get his editing done tomorrow and I'll post the few good ones though. For now, here is a sneak peek at Cora's dress:

EGG HUNTIN'

We set the kids off on the much-anticipated egg hunt this afternoon. Turns out Jay and I were anticipating it far more than the kids were... James was just happy to be outside!
Every egg he found, he wanted us to "Open it!" so he could eat the treat. He was completely uninterested in putting the eggs in his bucket (even after they were emptied). He ate a bit of chocolate this afternoon (as did Jay and I, since we were "hiding away" every other piece...)Once Cora determined that the grass wasn't too icky for her princess toes, she had fun gathering eggs from the patch we created for her. She even dumped a couple in her bucket.Hooray! Eggs ARE fun!
Don't mind all the leaves and branches in the yard, we've had some bad storms go through, and we're just thankful we didn't end up with any trees down!

Friday, April 29, 2011

"HULPING"

Ever since Cora started crawling and pulling up on things, James has taken greater and greater interest in her. He's even started playing with her (sharing toys, handing her toys, and showing her how to do things). I've always said that having cats prepared us for having kids, and we've recently discovered that having cats has prepared James for having a little sister. He plays with her a lot like he plays with the cats: petting her head, throwing balls for her to chase, dragging strings and cords around the house for her to crawl after (don't worry, I'll get video soon)... And since he got home from the hospital on Tuesday, he has been particularly sweet with her. Tonight he even helped her walk all the way down the hall, holding her right hand while I held her left. She LOVED his attention, and he thought it was so funny that she was walking, and was so proud of himself for "hulping" her. What a great big bro he's becoming!
And when she fell down, he tried hard to lift her back up, but she was "too heaby"!

Thursday, April 28, 2011

EGGS!

Well, we may have had to do it a bit late, but we finally got around to coloring Easter eggs tonight. And James had a blast!

If you notice his hands, you'll see that he's holding them strangely, with fingers splayed. That's because they still hurt. And now it's not just his thumb that is sore and peeling, but every single fingertip. And his toes. Stupid Kawasaki.

This one was Jay's creation.....

James was too cute. He kept asking for help:

I think we may just do this again sometime this weekend. A cheap and easy activity that the toddler loved. And most of the eggs can be reused for egg salad or deviled eggs. Most of them. Maybe we'll even go outside so he can REALLY get messy!

HEALED!

Cora's ears are HEALED!! And there was much rejoicing!

(Reading magazines in the ENT's waiting room this afternoon)

SHE'S GOT LEGS

And they look good on her!

Wednesday, April 27, 2011

MEDICINE SUCKS

Our recent battles with James in getting him to take his medicine had me searching through old video files, because before Cora got her ear tubes, her twice-a-day antibiotics were just as trying (if not more so) as this new development with James. Just one more way that our kids couldn't be more different... Well, except that now James hates medicine too. Cora has NEVER been good about taking her medicine though, and those 2 months of antibiotics about put her over the edge:

P.S. Jay did not know that I had the video rolling...

WORKING WITH MAMA. AGAIN.

Daycare was closed today. Again. This time due to a power outage (We've had 2 nights in a row of intense storms. Intense enough to have us running to the interior bathroom at 2:30am last night. Intense enough that James wanted a hug with every clap of "funder"). Still not sure why they needed to be closed the ENTIRE day for a power outage, but since nobody asked our opinion, we just had to roll with it. James stayed home with his "Gamma" and I took Cora to work. Again. She was pretty good this time though, playing with her toys, napping for an hour in her Beco, and learning to use a snack trap (thank goodness for Cheerios - they helped me get 20 full uninterrupted minutes in a row before our lunch break).

Tuesday, April 26, 2011

A LITTLE FRESH AIR

This little trooper needed some sunshine and fresh air BADLY this afternoon. And he deserved it! (And his Daddy deserved a nap in a quiet house) So we played with "Colors!"...


(I don't think chalk stains)

When I asked him if he wanted to go for a walk, he demanded to take his colors with him. And he wanted to carry them all by himself...The poor boy is still awfully wobbly from all his bedrest, and he fell down a bunch of times. In the driveway, up in the "orchard", in the grass. He never let go of those colors though...But then we found blackberries growing under the mailbox (we had recommenced coloring up on the "new" pavement at the end of our culdesac, where the asphalt is a nice, smooth, dark black)...So he got some fresh berries to go along with his fresh air. And he didn't want to share with me...And I didn't make him. He cleaned off the whole tiny bush. Even the red ones...

READY!

James was SO ready to go home this morning! As soon as Jay called with the all-clear from Doc Smith, us girls loaded up and headed out to collect our boys. By the time we got to the hospital, James had eaten bacon (after opening his breakfast tray, declaring "Ooh, the BACON!" and snatching it right up - makes you proud, doesn't it Stephen?) and had his IV removed. He didn't even fuss, I'm told. He knew what it meant. We changed him out of his little hospital gown into his "cop-tuh" jammies, handed over a balloon ("Tank you Gamma!"), and he was headed for the door. He told those nurses "All done" and "Bye-bye!" for the last time, blew them kisses, and we were out.
He goes back to the pediatrician in a week for a recheck, and in for a follow-up echocardiogram in 2 weeks. Until then, he gets a dose of aspirin every day and has to finish up his oral antibiotic. To which we have added flavor for the first time ever. Because although James used to be (and has ALWAYS been) the BEST medicine taker (seriously, he used to ASK for it, especially if Cora was getting medicine when he wasn't), 3.5 days in the hospital has changed all that. It is now an all-out screaming and kicking mess to get his meds into him, no matter how we try. And clarithromycin is NASTY, so the least we could do was add some fake grape flavor to counteract a bit of the bitterness. I know I've said it before, but I'm gonna go ahead and say it again. Can this sweet boy PLEASE catch a break for a few months? Please?

Thank you ALL so very much for loving our kids the way you do. Your thoughts and prayers and concerns over the past 4 days have meant the world to us, and we appreciate all your offers of help and support. We are very grateful that Jean was willing and able to stick around (How could she leave her baby when he was in need?), especially considering that she came out here for Cora's tubes surgery 2 whole weeks ago on a spur-of-the-moment call to duty, expecting to only be here a few days. I suppose a mama's/grandma's job is never done...

Monday, April 25, 2011

BUBBLES AND BARGAINING

James' fever broke around midnight last night, and he has been fever-free all day. He had another x-ray, but otherwise spent the day playing (we painted his legs and toes with watercolors, which was especially fun) and eating (bread, banana, and a whole slice of pizza) and simply getting his vitals checked. And waiting for test results, of course.
Doc Smith came by after her shift to let us know that the x-ray showed that his pneumonia is reducing in size. His echocardiogram (done Saturday morning, but not read until today) was normal (he'll have follow-ups of those down the road, since Kawasaki is a bit of a long-term disease). The ID on the "something" from his blood culture yesterday was just a germ from his skin (not something growing in his blood), so he didn't have to get another IVig dose, and all recent blood tests were good. As long as the fever stays away tonight and nothing else strange crops up, there is a good chance he can come home tomorrow! (And that "weird" spot on his leg is getting better finally. There is now a possibility that it is an abnormal presentation of ringworm, since those are the meds that are finally helping it.)

Oh, and as for the title of this post... As continued from yesterday, James did a lot of repetitive demanding. "Moh buh-bulls. Moh buh-bulls. Moh buh-bulls." (I seriously need video of this, it is so ridiculous.) We tried getting him to ask please, but he was so insistent for bubbles, we ended up teaching him to bargain instead. For example... James: "Moh buh-bulls. Moh buh-bulls. Moh buh-bulls." Me: "Take a sip of your juice and mama will blow more bubbles." James: glug, glug, glug. Me: blowing bubbles with the giant wand until I nearly passed out due to lack of air. Even though Jay told me to quit being dramatic, and that I would never run out of hot air... I chose to let that little comment slide, considering the man has been confined to 4 tiny walls for 3 whole days with a sad, sick baby.

Another beyond adorable saying that James has been using more and more lately, is "Okie-dokie". I taught it to him a couple months ago, and it is SO cute when he says it. Jay is convinced he is really saying "Duckie Duckie". That is what it sounds like, I suppose. Some of the time. Other than "Bye bye!" and "All done!", "Duckie Duckie" has been his favorite phrase over the past 3 days. It makes us laugh, it makes us smile, and sometimes it makes us cry. Like last night, when he was seeming so very sick again, and Jay was holding him tight and rocking him. He'd been quiet for a while, and I was telling him (and Jay) goodnight. As I was gathering my things, we heard his little "Duckie Duckie" and we both about burst into tears. Oh, little man, how your Mama and Daddy love you so...

Sunday, April 24, 2011

EASTER AT RIVER REGION

Well, it may not have been how we planned to spend the holiday, but we didn't let the hospital get us down. And we made sure that James and Cora still got to enjoy their Easter Buckets.

(We took Cora out in her jammies today, since we knew James was stuck in his. We just added legwarmers, to keep her warm at the hospital, and a bow, of course.)

(He was eating chocolate and organic gummy bunnies)

(Yeah, we know she's cute. So does she!)

UPS AND DOWNS

James had a good night last night. He even slept through most of his bp checks.
He was restless when I arrived at the hospital this morning, so we figured he was feeling better. He was even getting stir crazy, so we let him walk the halls a bit. He was really wobbly at first, having been laid up in bed for 24 hours straight.
When we got back to the room, we let the kids have their Easter buckets. And James played on the floor (next to his IV cart) for a long while.
Eventually he took a nap. New car clutched safely in his hand. And Jay and I enjoyed some homemade sandwiches from Christina and Al. Many thanks to them! There isn't much open in the way of restaurants on Easter Sunday...If I haven't mentioned yet, James has lost his most precious comfort item. His thumb. We noticed on Tuesday that it was peeling and cracked. Since we were worried it would get infected (since he had been diagnosed with strep the day before), we disinfected it and bandaged it up, and told him we were "fixing" it. He cried about it Tuesday night, but by Wednesday he was on board with leaving it alone. It "huht", and every time he forgot and tried to suck it, he'd feel the bandage and pull it out, showing it to us and saying "Fix it!" He's a fast learner, this kid. And a darn good sport. We got lots of laughs out of him this afternoon.The doc visited. Since he'd been free of fever and his bloodwork still looked good, we were likely to be going home tomorrow. Then things took a turn for the worse. James got fussy, and we thought maybe it was because he was tired (since he wasn't able to take his normal 2-hour nap, what with the usual hospital interruptions). I tried rocking him, reading to him, turning on a movie. Nothing. Then we noticed that he was feeling warm... Temp of 101.1, the highest he'd had throughout this whole sickness. He got some aspirin. Half an hour later, it was up to 101.3. Another half hour later it was down to 100.3, but we already knew we wouldn't be going home tomorrow. They ordered another round of bloodwork (and it turns out that yesterday's cultures had turned positive, which is not a good thing), as well as some Tylenol and Mylicon (he was having a very upset tummy, maybe due to an allergic reaction to something, or maybe due to all the chocolate he ate earlier in the day). Speaking of that potential allergy, his lips got really swollen. Between his red lips (newly bleeding, due to the swelling) and hot, pink cheeks, he looked a wreck. And he felt it. And we were getting scared.After a ridiculously long wait for his meds (1.5 hours to get doses of Tylenol and Mylicon, what the HECK pharmacy department?!), he finally got dosed. Plus his usual application of hydrocortisone on the weird spot on his leg, and A&D ointment for his lips (thank you Stephen for that amazing tip, it really is working wonders!) I refused to leave until James had his meds, so Cora was up well past her bedtime. Luckily, by the time we left (she, of course, needed to eat again) James was feeling a little better. He ended up eating 3.5 packs of Saltine crackers, drank almost a full cup of juice, and watched Dinosaur Train on his Daddy's laptop until he fell asleep.Here's hoping that he does well tonight, and that his new blood cultures remain clear. And praying that he starts to feel better very soon. It is so hard to see him in pain and discomfort. That is almost worse than the stress of wondering what is wrong with him...

Thank you all for your continued prayers. We need them.

Saturday, April 23, 2011

ADMITTED

James was scheduled to see his pediatrician this morning. She's on call this weekend, and decided on Thursday that she wanted to see him bright and early today, regardless if he seemed better or not. Last night, we thought he was getting better. He ate a good dinner (for the first time all week) and he smiled and chased us around the house. But then he woke at midnight, with his temp above 100 again, and a couple of new symptoms: red eyes and swollen lymph nodes. Two more symptoms indicative of Kawasaki Disease. His doc quickly decided that even though he didn't have all the signs, and his fever was far from the 104 usually indicative of Kawasaki, he showed enough symptoms to put him in the "atypical" category. Meaning that he had to be admitted for 12 hours of IV antibiotics and other tests.

Cora and I joined the boys and Jean at lunch time, after they were settled into the pediatric unit. James wasn't willing to eat (anything other than ice cream or jello, anyway), but he did enjoy feeding fries to his Daddy.
By the way, when they weighed him in, he was 30.4 lbs. That's almost a pound less than he was 5 days ago. Not a good thing. I wasn't there when he got his IV, but Jay reported that while painful to watch him go through, it really wasn't too much trouble. Except that it took the nurses a few tries (poor kid). They started him on fluids right away and attached a clean-catch bag for a urine sample. And they took blood for new bloodwork, as well.
After they started the antibiotics, they had to continually check his blood pressure and temperature to make sure he didn't have a negative reaction to the medication. James HATED the blood pressure cuff. He screamed in terror every time it tightened on his arm. That was a long 15 minutes. And while that was going on, he got an echocardiogram from the other side of the hospital bed. He didn't mind that much at all though. We just explained to him that the guy was taking pictures of his heart, and we got to see and hear it beating, and watch the blood flowing. After a few minutes we had him repeating "hawt" and "cool". Because it WAS cool to see. And really cool to hear that little swoosh-swoosh-swoosh, just like we used to hear on the doppler back when I was still pregnant with him. After the echo, he slept for about an hour in my arms.
When the nurse came back to check his bp again (they have to check it every hour while he's on the antibiotics), he woke just enough to fuss, look at me and demand "Sing!", then drift back to sleep while I sang (poorly, I admit) "Somewhere Over the Rainbow" (the one song that has always calmed him). Not long after that, a very rude man from x-ray barged in and told us to hurry up and get him up. When it took us longer than 30 seconds, he told us he'd be back for him later. Jay and I were ready to strangle him. In fact, I told him in no uncertain terms that he could use a bit more patience, and that my very sick 2-year-old child would be ready in 2 minutes and there was no way he was making us wait now that he had so rudely awoken him. Jerk. I totally reported him. Not to mention we noticed when we woke him that James' clean-catch bag had leaked. All over me and the bed. Yuck. At least they got enough for testing though. And to top that, Jay was then left waiting downstairs alone with James for 45 minutes, and had to come back upstairs to find a nurse in order to actually get into x-ray. Which was then extremely traumatic for James, since they had to use the medieval torture device to position him. The rest of the afternoon was pretty uneventful. We watched Wizard of Oz, played (one-handed, due to the IV) with James' new wooden stacking toy train (a little bravery award from us), and fed him M&Ms. He had fun naming the colors. And counting them. (He's getting better at that, by the way. He can go all the way to 8 now. Then he starts repeating 7, 8, 7, 8... Maybe his favorite number will be 7, just like his mama?) His temp finally dropped back to normal. And he ate a full dinner of mac-n-cheese and applesauce. He thought his security anklet was particularly interesting.By the time I left at 7pm, he had accepted the blood pressure cuff. Now he simply grimaces, then reports "All done!" when the pressure lets up. His bloodwork is clear so far. His urinalysis was clean (hooray for not having to get a catheter!). His x-ray showed that same small spot of pneumonia. His liver function is slightly elevated, but his white cell counts are still normal. The IV antibiotics should finish up around 1am, then he'll get his 2nd dose of oral antibiotics (for the pneumonia/strep). Jay texted me that James finally fell asleep at 9:25pm, and the bp checks will only be every 2 hours through the night. Hopefully my boys can get some sleep. Us ladies came home to wash bedsheets and Lysol the house...

Friday, April 22, 2011

HARDLY WORKING

With daycare closed for Good Friday and James still so sick that he requires constant attention and comfort, Cora trekked to work with us this morning. And again this afternoon (dang you complicated abstract submissions!) She isn't a huge fan of my tiny office (even with half a dozen toys brought along from home), though she loved crumpling my semi-important paperwork. Luckily, I was able to work hard (and fast) while she napped in her Beco. Then she wooed the ladies in the halls with her "uh oh's" and smiles. And she is currently nursing contentedly and dosing again. Probably dreaming about tearing apart my boxes of field supplies...