James had a good night last night. He even slept through most of his bp checks.
He was restless when I arrived at the hospital this morning, so we figured he was feeling better. He was even getting stir crazy, so we let him walk the halls a bit. He was really wobbly at first, having been laid up in bed for 24 hours straight.
When we got back to the room, we let the kids have their Easter buckets. And James played on the floor (next to his IV cart) for a long while.
Eventually he took a nap. New car clutched safely in his hand. And Jay and I enjoyed some homemade sandwiches from Christina and Al. Many thanks to them! There isn't much open in the way of restaurants on Easter Sunday...
If I haven't mentioned yet, James has lost his most precious comfort item. His thumb. We noticed on Tuesday that it was peeling and cracked. Since we were worried it would get infected (since he had been diagnosed with strep the day before), we disinfected it and bandaged it up, and told him we were "fixing" it. He cried about it Tuesday night, but by Wednesday he was on board with leaving it alone. It "huht", and every time he forgot and tried to suck it, he'd feel the bandage and pull it out, showing it to us and saying "Fix it!" He's a fast learner, this kid. And a darn good sport. We got lots of laughs out of him this afternoon.
The doc visited. Since he'd been free of fever and his bloodwork still looked good, we were likely to be going home tomorrow. Then things took a turn for the worse. James got fussy, and we thought maybe it was because he was tired (since he wasn't able to take his normal 2-hour nap, what with the usual hospital interruptions). I tried rocking him, reading to him, turning on a movie. Nothing. Then we noticed that he was feeling warm... Temp of 101.1, the highest he'd had throughout this whole sickness. He got some aspirin. Half an hour later, it was up to 101.3. Another half hour later it was down to 100.3, but we already knew we wouldn't be going home tomorrow. They ordered another round of bloodwork (and it turns out that yesterday's cultures had turned positive, which is not a good thing), as well as some Tylenol and Mylicon (he was having a very upset tummy, maybe due to an allergic reaction to something, or maybe due to all the chocolate he ate earlier in the day). Speaking of that potential allergy, his lips got really swollen. Between his red lips (newly bleeding, due to the swelling) and hot, pink cheeks, he looked a wreck. And he felt it. And we were getting scared.
After a ridiculously long wait for his meds (1.5 hours to get doses of Tylenol and Mylicon, what the HECK pharmacy department?!), he finally got dosed. Plus his usual application of hydrocortisone on the weird spot on his leg, and A&D ointment for his lips (thank you Stephen for that amazing tip, it really is working wonders!) I refused to leave until James had his meds, so Cora was up well past her bedtime. Luckily, by the time we left (she, of course, needed to eat again) James was feeling a little better. He ended up eating 3.5 packs of Saltine crackers, drank almost a full cup of juice, and watched Dinosaur Train on his Daddy's laptop until he fell asleep.
Here's hoping that he does well tonight, and that his new blood cultures remain clear. And praying that he starts to feel better very soon. It is so hard to see him in pain and discomfort. That is almost worse than the stress of wondering what is wrong with him...Thank you all for your continued prayers. We need them.
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